So, Joshua took Jaymeson to see the GI today and BOY and I confused!
This whole thing started because they thought Jaymeson had had too many Antibiotics and this had caused his body to fight food instead of absorbing the nutrients.
NOW, they have put him on an antibiotic to STOP the diarrhea! I called the GI and am awaiting a phone call back for further clarification! Has anyone heard of Alinia Antibiotic and what do you know about it?
I am so frustrated and just want my baby boy to feel better! But this is so confusing!
This blog will be mainly about my trials, tribulations and triumphs of being a mom to a 2 yr old son with severe asthma and FM (Fructose Malabsorption). I will also share my joys of being a Mom to BOTH my sons!
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26 October 2010
16 October 2010
New Enzyme
We went and saw the GI Doctor this week. And although he has made progress we still have A LONG way to go!
Doc is happy with the progress he has made, but wants to try some other things and MAY want to do more blood work.
Jaymeson is now on an Enzyme for helping to digest his fats. We have been praying for everything to get better now that he is on this. However yesterday and today have not been great days. After pooping about 6 times yesterday and then about 4 so far today his butt is RAW.
Because of his body not digesting both fats and sugars well his poop is VERY acidic. Josh has wanted to add on a room to our house JUST for diaper changes. It is the stinkiest poop I have ever, ever smelled. And the acid in his poop is horrible to his skin.
I have had to put Neosporin with pain relief on it just so he can sit. And a special diaper rash cream to beat the acid....
Equal parts Aquaphor and Creamy Desitin and Mylanta. I know it sounds weird, but the antacid in the Mylanta works to protect his cute little bottom from the acid in his poop.
We go back in two weeks and will keep you updated!
Doc is happy with the progress he has made, but wants to try some other things and MAY want to do more blood work.
Jaymeson is now on an Enzyme for helping to digest his fats. We have been praying for everything to get better now that he is on this. However yesterday and today have not been great days. After pooping about 6 times yesterday and then about 4 so far today his butt is RAW.
Because of his body not digesting both fats and sugars well his poop is VERY acidic. Josh has wanted to add on a room to our house JUST for diaper changes. It is the stinkiest poop I have ever, ever smelled. And the acid in his poop is horrible to his skin.
I have had to put Neosporin with pain relief on it just so he can sit. And a special diaper rash cream to beat the acid....
Equal parts Aquaphor and Creamy Desitin and Mylanta. I know it sounds weird, but the antacid in the Mylanta works to protect his cute little bottom from the acid in his poop.
We go back in two weeks and will keep you updated!
10 October 2010
Proud Moments When Things Get Tough
Sorry it has been so long since I have posted! I should be sent to the minors of the blog world! LOL Anyway if you are a regualr follower, please dont think I am neglecting you, I have just been ultra busy!
So....what has happened in the last two weeks? ALOT of course!
Jaymeson has been making progress. We still dont get to have a turd party, but I have faith we will! We have appointment at the GI doctor on Tuesday and we hope to get some news on a "next step", but we are assuming that it will be another appt where we are reasurred that we are headed in the right direction, but need to JUST KEEP AT IT! :)
One big moment I want to share is acctually a testiment to how wonderful of a big brother my older son, Jonas, is!
Last week Jaymeson must have snuck someone elses snack at daycare (that is the ONLY place I can think it would have happened). I only guess this becuase we woke up to a DISASTER.
And when I say DISASTER, I TRUELY MEAN IT!!!!!
I woke up and as usual I got Jonas up, packed lunches, packed bookbags, got a shower, did my make up and hair and got dressed. Then I went to go get Jaymeson.....
Now in the days before we started the new diet I used to do a "smell test" every morning. I would get up early, and walk past his room and SMELL if I needed to wake him up early! I know it sounds silly but it is just one of the many ways we had acquired ourselves to Jaymeson's Poop! However, since we havee been seeing so much improvement I have left this part of my morning out.
So....I was so surprised when I walked into his room and the stench hit me like a bag of bricks. WOW!!!! For such a "pretty little boy" he sure can clear a room!
I know what your thinking....WHAT DOES THIS STORY HAVE TO DO WITH JONAS!.....Just wait I'm getting there!
So back to the story, I had put Jaymeson in some adorable feety pjs for bed that night. I love to cuddle up to my babies in these jammies and they always sleep so sound in them. I went in to get him and at first I thought it was some stinky pooop, but the bed was clean. "YES, we are in the clear!"
What was I thinking! I started to unzip his pjs and WOW....poop was everywhere! And YES everywhere. In between his toes, under his toenails, in his arm pits! UGH!
Well, when this was a regular occcurance I used to have everything set up and ready to go. I would lay a bathtowel in the middle of the floor (he is WAY to big for a changing station), I would have a warm soapy wash cloth (only get him clean enough for a bath), lotion in case it was a mild poop and I didnt have time for the bath (I know, but sometimes we were bathing him two to three times a day!), diaper rash cream (when your poop ios so acidic that your brother gags from the smell you would need it too!), a plastic grocery bag (to dispose of the stench) and MANY MANY WIPES ( I swear I should have stock in HUGGIES!) but this hadnt happened in so long that I wasnt prepared.
So, I needed my main man, Jonas! I hollered for Jonas and he immediately showed me how awesome a big brother he can be! He ran into the bathroom and got me a bathtowel and before I could ask him he was running back in and getting a washcloth. Next I asked him to get me a diaper and wipes and he rocked it out agian. And at the end he even took the NASTY diaper, put it in the plastic bag and ran it out to the trash barrel! It was so great to see him WANT to help me and his baby brother! By the time we were done WE had accomplished it all in record time and Jonas was NOT late for the bus!
There are MANY MANY times that I am proud of Jonas and he shows me how much he wants to help his baby brother. BUT WOW, he had shown me just how amazing he is ONCE AGAIN!!!!!!
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